The past 9 mos have been difficult. I am not in here much because after 4 procedures & 3 more yet to go, My choices of procedures (both of which are life altering) are
1. Fistulotomy - which is the only way to get rid of these things permanently, but come with fecal incontinence for the rest of my life or
2. A permanent colostomy and fistulotomy, removal of rectum and to sew it shut for lack of a better way of describing it.
I am 52 will be 53. I already know what my choice is because I am not spending the rest of my life shitting my pants. I got things i want to do and hopefully at some point a social life. So starting my 2015 adventures in rectal surgery yet again and hopefully this will be the last year I spend in continuous surgical procedures for the whole entire year and my health will level itself.
People ask me how do you do it, deal with all this stuff? Medication helps lol, a sense of humor is paramount. There are so many in worse shape than I am. But yes Lupus, Fibro, Neurological issues all impede healing and I could be a case study for someone in their medical classes. I think the day I lose my sense of humor will be the day I give up and cant do it anymore. This particular illness has been very taxing on me emotionally. It is not only extremely painful, it is embarrassing and isolating in that how do you tell a date you have 3 rubber drains in your butt??and on what date??LOL. Just know if i dont answer you its because I don't know what to say or do. Most of you bozos want sex and I'm not in any way capable of that for a good while. So just know there is nothing wrong with you, its me. I am broken in more ways than one., but still holding on with the help of some Gorilla glue