How many people are diagnosed with Asthma, Chronic Bronchitis, Or Emphysema? ALOT
Is it LAM?
LAM goes undiagnosed or is MISDIAGNOSED as ASTHMA, EMPHYSEMA, or CHRONIC BRONCHITIS!
Hi Everyone,
My name is June. I'm 35 years old and I was recently diagnosed with a rare,progressive,fatal lung disease I had never ever heard of.
In fact, not many people have.
In September of 2006 After a catscan of my chest I was diagnosed with the beginning of Emphysema.
It was misdiagnosed as it often is.I was also told prior I had Asthma, and Chronic Bronchitis. The disease I have is called Lymphangioleiomyomatosis. also known as "Lam" and as of yet there is no cure.
Lymphangioleiomyomatosis is pronounced lim-fan-gee-o-ly-o-my-o-ma-to-sis. "Lymph" and "angio" refer to the lymph and blood vessels, "Leiomy" means smooth muscle, and "oma" is a tumor. The last part "tosis" refers to a disease condition. I have 25-30 cysts in my lungs. At times I get very tired.I cough alot and am short of breath most of the time and am easily fatigued.
My recent catscan is now much worse. Along with all the cysts I have multiple "nodules" in both lungs.
The disease has progressed.
LAM is a metastatic disease affecting the lungs, the kidneys, the lymphatic system, and at times, the brain.
LAM is fatal in the lungs as thin-walled cysts progressively destroy healthy lung tissue.
Well if I had LAM wouldn't I look sick?
NO
Now look at a catscan with someone with LAM!
There is no effective treatment and no cure.
It kills women from all races, class backgrounds and countries by suffocating them to death.
Well, wouldn't my doctor know if I had LAM?
Not unless he ordered a high resolution catscan!
I have only found 10 doctors in the United States who even know about LAM!
The Life expectancy for someone with Lam is 7-10 years from onset of the disease.
Time is running out for me and other woman with Lam.
I need YOUR help.
I've turned to myspace to raise awareness and try and educate the community so nobody else goes undiagnosed or is misdiagnosed.
Doctors say LAM affects 1 in 3 million people.
I don't believe this.
If you or someone you love has been diagnosed with Asthma, Chronic Bronchitis, Or Emphysema you need to read about LAM.
For more information on Lam and the Signs and Symptoms,
please visit The June Christine Lembo LAM Foundation at www.myspace.com/hope4lam
Click the below banner link.
PLEASE help me raise awareness for LAM and "PAY IT FORWARD" and repost this to your friends.
