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Update from Jan. 19

Hi Everyone it's me again Lillianna, I am doing good today mommy was here yesterday with my sister Sheila. I was looking at Sheila and held her hand while mommy held me. I was so comfy listening to her heart beat and her breath. I fussed a little because the cpap won't let me move like I want to. Mommy got a call she did NOT want to get. I have a slight bleed on the other side of my brain now, it could be that they just didn't see it before. But the worst part is that I have some swelling starting, which means there is a blockage. The Dr told mommy there is nothing they can or will do at this point that they are just going to watch it. They have this lady coming to see me from Occupational Therapy now.She is supposed to help asses if I am behind in any development I am suppsosed to be at right now. But mommy can tell you I move my head all around to get it where I want it. I know when my mommy is walking in and I start to fuss, it seems to make her move faster to get to me. I Love to lick her skin when she is holding me and the GOOD news is that I am now 2 lbs 15 oz. I have been doing better since I am on the cpap now. But it is uncomfortable. Mommy put pictures up in my isolette of my sisters and brother. Wow I have a big family to come home to and can't wait to play with Stephen he wants to come and get me now but the Drs won't let him.He says he can make me better and he is going to share all his stuff with me. I must be special cause mommy said Stephen doesn't really like to share his transformers but he put one up just for me! Nichole sent me a little Teddy Bear and the nurse hung it up on the top of my isolette so I can see it. I get clean blankies every two days from mommy she brought me 3 sets and I like the purple ones better. The best part of new blankies is the smell of mommy and home. I can't wait to see everyone. P.S. Mommy says Thank You for your prayers and support. Love, Lilliannna a.k.a Lily This is me and my mommy
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