This was taken from Lilli's CarePage.
I am just a busy little girl I haven't had time to update all of you. I started eating from my bottle on Tuesday at first just 16 cc's once every 12 hours. Yesterday they decided since I did such a good job with that that I could have 36 cc's 3 times a day. I have done very well with that except a very little spit up while burping. So today I might go on eating every 3 hours. Hopefully with out this tube soon it is really making it hard to keep my food down. I got to have a few days with the top of my isolette up but I had a little bit of a hard time keeping my temp at a normal level. So they closed it yesterday . I lost a little bit of weight I am now 4 lbs. 1 oz.
Mommy said daddy finally direct donated blood for me and my Dr is waiting for it to come before she gives me my 3rd blood transfusion . I need it this time because I am anemic and can't produce blood on my own fast enough yet. But the way things are looking I will be home soon. My Dr. said I could technically go home except I am having spells again and I need to control my temp and I need to be eating straight from the bottle or breast. Mommy and the Nurse Scott (he took care of my sister Samantha when she was born!) said that I am a good eater and take after my sister . My NP said that I will probably go home on a monitor and my mommy,daddy and sister Sheila have to take a class on the monitor and how to give me my medicine caffiene.
I think mommy is upset because she talked to the best team lady and said her milk is slowing down again and she really didn't want me on formula but then she agreed to supplement my feds with formula but she said it has to be the kind my pediatrician recommends and she talked to Dr. Steve and I will get Neosure. I guess mommy is more comfortable with Similac products. Boy all this gets confusing.
I got to see my Big brother and other two sisters the other day!!!!! I heard my brother and sisters and woke right up! I can't wait to play with them but my sister Samantha wanted to pick me up and cried louder than any of my friends can! I thought Nathaniel was loud , not compared to my sister she beats them all. hehe. Well heres the Dr.s for todays check up so I will probably have more news later today or maybe tomorrow if mommy lets me back on the computer soon. hehe.
I Love you all !!!! God Bless all of you!!!
Love Lillianna a.k.a Lilli Marie
