This was taken from Lilli's CarePage
Gey time flies in here. Well I am now getting the bottle or mommy 6 times a day and I eat 8 times a day. So 2 of my feeds are still through the tube but that will probably change tomorrow again.I have just spent these past couple of days hanging out learning to regulate my own temp. and eating. On Monday when Mommy came and was feeding me my physical therapist came and told mommy how to hold me and burp me. She said I am really stressed especially when mommy can't spend alot of time with me on certain days. But I haven't had one of my spells since the 9th. Well not really.(hehe) So anyway mommy is learning these new things with me. Everyone needs to make slow steady movements when taking care of me or I stress out and tense my little body. I have a tendency to pull my head back and to the side slightly so we are working on that now too. I had a consult with my new GI dr. and she ordered a bunch of tests. She put me on phenobarbatol for my Gallbladder. It seems that it is filled with some sludge and is moving things through slower than it should. I will have a highda scan done on thursday to check that out and see if the meds are helping me. Mommy said she thinks they are because my poopy was dark today and really stank bad. She made a funny face when she changed me and I had to just wee wee allover my blankies and clothes to make her laugh cause she was moving tooo slow. Well I was wide awake by the time she fed me and I got to nurse today. I had my full feed by nursing! Everyone said that I was a good girl and did a great job! As soon as I was full I fell asleep on mommy and she put me down and had to leave. Mommy wanted to see my sister before she moved to Miami. She said she will be back to visit me soon. So everyone please pray for her too and wish her luck! Oh yeah ! I weigh 4 lbs. 4 oz. and I have been put into a basinnet at the hospital! Boy the nurses made such a big deal of that. I will update you more tomorrow because things are moving along here and I think I might be home soon and that is why they are having all these new drs come in and see me.
Night Night
Love Lillianna
