OKAY FOR THOSE OF YOU THAT ARE CLOSE TO ME, KNOW ABOUT MY 10 MONTH OLD BABY'S HEALTH ISSUES. I RECIEVED A PHONE CALL TODAY FROM OUR GENETICS DOCTOR WITH SOME ANSWERS..... MY SON IS 1 IN 3 IN THE WORLD WHO HAS THIS CONDITION.... I CANT PRONOUNCE OR EVEN BEGIN TO SPELL WHAT IT IS!!!!! WHAT IT BOILS DOWN TO IS THIS, HE IS MISSING 1 OF HIS CHROMOSOMES # 20. THE OTHER TWO REPORTED CASES HAVE HAD LEARNING DISABILITIES, SEIZURES, SLOWED DEVELOPMENT, SPEECH PROBLEMS, AND HEARING PROBLEMS. ONE OF THEM DIED AT AGE 7!!! AARON HAS SIEZURES AND IS ABOUT THREE MONTHS BEHIND IN HIS DEVELOPMENT. A SOCIAL WORKER IS GOING TO COME OUT AND EVALUATE HIM TO TRY AND TRY TO SET US UP WITH HOME VISITS TO HELP!!!! HIS FATHER AND I NEED TO BE TESTED TO THEY CANNOT GIVE US ANY REAL ANSWERS AS TO WHAT TO DO OR WHAT TO EXPECT THEY DO WANT TO DO ALOT OF TESTING AND EXPERIMENTING AND I'M OT SURE ABOUT THAT. I DONT WANT HIM TO BE A FREAK SHOW. BUT ANYWAYS THERE IS NOTHING WITH THIS DISORDER THAT LINKS TO HIS EYE PROBLEMS. SO IDK WHERE THAT IS GOING TO GO. THATS ALL I KNOW RIHGT NOW... I LOVE YOU GUYS TY FOR CARING AND BEING MY SUPPORT THROUGH ALL MY HARD TIMES.... I KNOW I AM NOT AROUND ALOT BUT YOU GUYS R MY FAMILY AND I LOVE YOU ALL!!!!!!
