Taken from her Daddy's Blog
While you read her story Please Try to open your hearts. Sometimes we forget
about how important some things really are when we get distracted with the land
Thank you for taking the time to read baby Roxan's Story....if its not to much
trouble to ask can you guys please repost this! Spread the word we need to get her
all the help we can get!
I am reaching out to you all in hopes that some of you will find it in your hearts to help me help my daughter. Below is a link where you can help contribute to her happiness and well being. I also included a bit about her and what she is going through. Please take a moment to do what you can. Simply CLICK THE PIC below to contribute, please.
Roxan was born on November 30th 2008 at 6:27pm. She was a month premature and weighed in at 4lbs 6oz.
Roxan was born with many complications, some severe and others strictly cosmetic. The entire left side of her body, inside and out, was and is under developed and deformed. Literally head to toe. As of yet the doctors still don't have a reason. We are constantly in and outfor appointments and check ups looking or an answer.
Roxans skull is deformed in such a way that her brain wasn't able to grow properly and one half is now smaller and more underdeveloped than it should be. This may lead to mental retardation and other learning/function problems. She is too small for surgery to correct the skull formation or relieve pressure on her brain right now though.
Her left eye is about 1/4 the size of the right and barely opens. She may go completely blind in it or lose it all together. Her nose and lip are also deformed and will require cosmetic surgery to correct. Her left ear was under developed and so far she has failed each hearing test in it. We fear she may remain deaf in that ear.
She was born with a common murmur and slight arrhythmia in her heart, which is no big deal, but she was also born with a larger hole between the two upper chambers of her heart. So far it hasn't caused much of a problem but the cardiologist believes heart surgery is going to be required. We just pray it holds long enough for her to grow and gain some strength b4 that happens.
There is reflux of urine into her kidneys which we battle with constant antibiotics hoping it clears itself up, but surgery looks likely for that as well.Again, she is just too young and small for surgery at the moment.
Roxan was also born missing one of her fingers, the pointer on her left hand, and her left foot is severely deformed to the point of traditional shoes not being able to work for her. The finger we will have to live with, but the foot will definitely need several surgeries to correct the bone growth and re align the foot properly. I don't think there is much they can do for the missing toes, but we will see.
Other than the life threatening, and simply cosmetic, problems Roxan is facing she is a happy girl. We, as her parents, want her to have the happiest life we can provide and know it is going to take a lot of extra time, love, care and money to make that possible. That is why we are reaching out to you with this website. As tough as it is to say and admit, we can not do it alone.
So here we are reaching out to you for help and support for our baby girl, Roxan. Any and all donations are greatly appreciated no matter how large or small. We know times are tough but ask you to find it in your heart to help make our baby a happy little girl in every way. Please donate and pass our page link along to anyone and everyone you can. Blog it, bulletin it, make a flier! Do the small things that will make a huge difference in this little girls life.
Thank you for your time and consideration.
With sincere thanks and appreciation,
AJ, Liana and of course, Roxan.