*******OCTOBER IS RETT SYNDROME AWARENESS MONTH********* a lil bout rett syndrome: Rett syndrome is a neuromuscular disorder. My daughter cannot control any of her muscles in her body..including her eyes or tongue or mouth. She DOES walk but with a very unsteady gait. She has to wear a helmet when she walks when she's not in her wheelchair. She cannot feed herself, bathe herself..has to drink from a baby bottle even tho she's 12.5 yrs old..and will be in diapers all her life. She has a seizure disorder, scoliosis, and hypothyroidism. Every day is is a challenge..and a blessing. She does not talk but expresses herself with her eyes and is the happiest child you'll ever want to meet.
LOOK! ITS ME AND MY DAUGHTER JULIANNA! SHE HAS LEARNED TO HOLD A FORK FOR A SECOND! WE CELEBRATE THE LITTLE THINGS AROUND HERE! ENJOY! (go to www.rettsyndrome.org for information on my daughters disability) Jules eating with a fork
~ i try my hardest to give back the love to each of you ..but many times my real life beckons me - so I am limited on time.. so if i missed you, it wasnt intentional. Just lemme know ~
Please visit my blog called "My Life" and stash to learn more about Rett Syndrome and Autism. These are the disorders that stole my children. I'm not asking for anything other than to educate yourself..simply so you can understand ME better. I dont need pity - i need friends. -thanks
IF YOU SB ME WITH A MSG ABOUT MY BOOBS, YOU WILL BE AUTOMATICALLY BLOCKED. I KNOW ABOUT MY BOOBS ALREADY. I LIVE WITH THEM..THEY'RE ATTACHED TO ME..SO I DONT NEED REMINDERS ABOUT THEM FROM YOU YOU EFFIN PIG. GET A LIFE AND GFYS!
I got this acct cuz i couldnt be myself on my myspace acct cuz my daughter is my number 1 and i couldnt be krayzee so here i am LOL MY FUBAR FAM ROCKS!!!A special shout out to MY WONDERFUL OWNER FELINE CASANOVA..THE ABSOLUTE BEST OWNER ON FUBAR!!!!! CANT FORGET:VAMPSDESIRE, PROPERLYTWISTED, S1LKENELDER, PIERCED GODDESS, NATURAL WITCH, and KELLY ANN *INSERT HEARTS HERE* .. fyi, i'd totally do all of them LOL (but only in a non sexual way for kellers) LOL ~ahhh good times good times~ *** I dont feel the need to put glittery things on my profile to get people to know me. I find words to be just as good. Also , and this is just MY opinion, but I think that its crazy that so many women on here represent themselves in such a slutty way in order to get attention or rated. Hey, i understand..if ya got it, flaunt it, thats fine and dandy but when your pictures scream 'slutty ho', thats where I roll my eyes. I also hate people who DONT READ PROFILES. Facts bout me: I am married I'm Italian We own a deli/pizzaria I can type 90wpm I have very low self esteem. My favorite color is black. My favorite movie is fight club. I have an older and younger brother. My favorite meal is pasta. I'm addicted to coffee. My husband makes me laff so hard I could pee! Water is my choice of cold beverage. I love beer but only drink a few times a year. I'm a midnite toker. Thunderstorms scare me. I dont wear socks at all in the summer. I'm a black card member of Planet Fitness. I do have a myspace and a facebook. I get migraines alot. I love listening to my Ipod. I know sign language. I like to make up words. My favorite cookie is an oreo. I graduated in 1987. I'm best friends with my mom. My husband sumtimes drives me nutz . I'm facinated with the mako shark. I'm learning wicca. I love candles. I'm a lil depressed at times. I HATE todays hip hop/rap/pop music. My eyes are a honey brown color. I'm an artist. I fart and burp alot. I'm a sinner. I dont drink enough milk. There's more to me than my hooters. I love making people smile. I've been chatting online since 1997. I'm bisexual. I love crossword puzzles. I'm left handed. (i'll add more later..this is taking forever) lol
seriously tho - i'm a mother to three angels, ages 14 13 and 11. The two youngest are severely disabled.My 11 yr old daughter has a rare neuromuscular disorder called Rett Syndrome and my 13 yr old son has Autism. My 14 yr old suffers from PMS, but there's a pill for that LOL
My online life is the only social life that I have due to the fact that I dont have many friends here..being a parent takes up most of my time.
I Love meeting friends *specially funny ones that know how to put a smile on yer face* so hit me up. LOL I cant believe i just said 'hit me up'.. gawd i'm a goob.
Music:
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(last updated:October 5, 2008 @ 7:17 am)
I LOVE rock N roll.. classic rock, hair bands etc etc. I love everything from Ozzy to Nickelback, Eagles, Foreigner, Led Zeppelin, Green Day, Theory of a Deadman, Staind, Pink Floyd, My chemical Romance, KoRN, Judas Priest, Blue October, Breaking Benjamin, Dishwalla, Metallica, Seether, Altar Bridge, Slipknot, Soundgarden, etc etc I only listen to dance type music when I am at the gym and on the treadmill or the elliptical.. it helps to keep the pace faster. I cant stand alot of todays pop music. It all sounds the same and they play them every freaking 20 minutes. Rock N Roll all the way!! m/ rock on!
Interests:
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I enjoy spending time with the kids and making them laugh, not being told what to do, being online, doodling, 420fourtwenty420, smilin, great rock n roll, partyin and spending time with good friends :)