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I am a mom of a special needs son, he is 10 and his name is shane. Shane was born with a extremely rare genetic mutation called X-Linked Hydrocephalus which is basically spinal fluid in his brain that collects in the ventricals and makes them large and swollen, His mutation has never been documented before and has been the only case seen in the world so far. Along with the hydrocephalus he has Spina Bifida, Autisim, visual imparmant, and is mentally and physically challanged. Shane has had several surgeries, and 1 shunt revision for a shunt failure. A Shunt is the device placed in his brain to drain the fluid in to his stomache lining to help his body asorb it.
