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Lanah ExoticAngel's blog: "My bloggy :)"

created on 04/28/2011  |  http://fubar.com/my-bloggy/b340799  |  2 followers

Seizure????

So, Thursday I had lunch with my parents. We leave the restaurant, I sit down in the car and I suddenly slip into a severe seizure that lasted over 1 hr. The last thing I remember, is sitting down in the car, then I woke up in the ER. Apparently I went into the severe seizure,was blacked out & totally incoherent for over 1 hr.
When I came to, I was laying in the ER and a nurse was working on my IV. My mom was over me crying :( At first It felt like a dream. I looked around and it took me a min, I asked my mom if I was in a hospital. She said yes, that I had a seizure. I don't remember ANY of it. I just sat down in the back seat of the car, and I suddenly woke up in an ER. I didn't know if we got in a car accident,if my parents were dead or what happened. When my parents noticed I was in a seizure, my mom called 911 as my dad sped to the closest ER.
A lil while after I came to, and my crying stopped(I was pretty scared not remembering any of the seizure) The Dr's came in and took me for a CT Scan. They didnt notice anything out of the normal, but decided to keep me overnight for observation.
I spent Thursday night-Friday night in the hospital taking in quite a few bags of IV Fluids. They did a neuro study on my brain friday, everything seemed fine.
My head hurt like hell both Thursday and Friday. Still quite a bit today. It was so awesome to have James and my parents by my side. He left work as soon as my mom called him, crying, telling him where I was etc. According to the Drs I'm not allowed to drive for 90 days, which is fine by me. Just last week I went to town alone to buy groceries...If I had slipped into a seizure then I could have died...or killed someone else :( Needless to say, its been quite a few strange last couple of days...

What It Really Means to Have Endometriosis

In last week’s post (“What is endometriosis?”), I said that endometriosis by definition is a disease process where the inside lining of the uterus, the endometrium, flows back up inside of the body around the ovaries and bowel where it implants and begins to grow. Quite frankly a lot of this medical stuff can be quite dry and boring and does not convey what it is like for a woman to have this disease and how it truly impacts her life, her family, her career, her sex life, and her ability to live her life in very basic ways.

In reality, this disease can be like having tens or hundreds of excruciatingly painful blisters covering the inside of the pelvis. Infertility and pelvic pain are the two most common symptoms of endometriosis.

Patients with endometriosis can experience horrific pain – for the lucky ones it lasts just a couple of days during their period, and in the worst cases the pain is 24/7. The dichotomy between the way women with endometriosis look well on the outside but are experiencing excruciating pain internally can cause even well-meaning people to doubt the severity of their pain.

Most women begin to have pain in their teenage years, sometimes even starting in junior high school. While similar in timing, this pain is completely different than normal menstrual cramps. It is not uncommon for these girls to miss a couple of days of school each month from cyclic pain that can exceed the level of pain patients experience after major surgery.

A lack of awareness of this disease can leave these girls without a correct diagnosis and support from their physicians. This can lead to a lack of appropriate treatment for the pain and invalidation of the patient’s situation. Her family is now led to believe that psychological issues drive the severity of her pain.

In this tragic situation, she is effectively held prisoner and tortured by her own body in broad daylight, with no one who fully understands her situation or who can effectively help her.

The symptoms usually progress as she matures into a young woman. Both the severity and duration of the pain typically increase. Initially most days each month are pain-free, but the number of these days slowly decreases until there are a greater number of non-functioning pain days. The unpredictability of the increasing number of pain days makes it challenging to maintain a functional life. It becomes increasingly difficult to make plans for a future date as it becomes more likely that it will be a pain day and she will not be able to follow through on her commitment for the activity.

As a disease, endometriosis can take away many additional aspects of a normal life. Mothers cannot reliably meet the needs of their children when the pain is too severe to function. Wives try to push through the pain to be intimate with their husbands, but eventually the pain becomes too intense to continue. Grinding fatigue as severe as that experienced with advanced cancer is present in most cases. Bloating, moodiness, and bladder and bowel issues are common as well.

Feeling like a vibrant desirable woman is long since gone. Acting like the loving compassionate woman, mother and partner that she truly is becomes more and more difficult. The stress on family relationships is common and real.

Even at this stage, most women fight the disease, refusing to let it completely take over their life. You would most likely pass right by them in public, having no idea of the devastation they are dealing with. Most of the time they get up, put on a brave face and do their best to live a normal life.

The medical definition of endometriosis does not even begin to describe the reality of what it means to have endometriosis. The next time you hear about endometriosis, please remember how devastating this disease can be to a person. While endometriosis can be frustrating, if you have a loved one, friend or co-worker who suffers from endometriosis, please remember to treat them with respect and compassion.

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