He's having some troubles
Well It is 6 days until the "planned" date for him to come home.
Kaleb had a few problems in the last few days. They got him up to full feeds on the J tube and took him off of Reglin (this is a acid reflux med) and then he started to throw up again. So they did a gastric study and pored contrast into his G tube to watch exactly where it went in his digestive tract. The study showed that he immediately started to reflux pretty bad so they have determined that he will have to be on Reglin. They took him off of feeds yesterday and are slowly building it back up to full feeds. He is almost completely wheened off of the phenobarb. He has been moving more since they have been lowering the doses. They are still shooting for monday as far as him coming home, but because of the recent problems it may be pushed back to tues. or wed. He still isn't blinking at all. We think he can see something but we are unsure of what exactly. He is getting so long and so skinny. Before all of this happened he was a chunky boy because if you can't tell Josh nor I are small people.
I am preparing like crazy for him to come home. There are like million things that I am trying to cram into this week. Hopefully it all gets done. I am sorry that I haven't posted any photos recently, I've been busy busy busy. I will try to post 3 more when I get home tonight. One he is in his stroller, and two with his eyes WIDE open. Lately when Josh and I leave, he will make a noise like he knows we are leaving and it is just heartbreaking. Earlier when Josh and I went to go get lunch he was holding my finger and when I pulled my hand away, he made a little crying noise. It just makes my heart melt. He is SO strong. I am so amazed by his strength. I know that God has him in his hand and is giving him all the strength in the world. He is our little Spartan.
I am so excited that the day he comes home is drawing near. I can't wait to just be able to hold him in my arms and rock him in his bedroom. Only 6 more Days....
