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Haley's Final Diagnosis

So we are finally home. It was a long 3 days, but well worth it. The testing didn't go as planned. The doctors had hoped Haley's blood sugar would have dropped more before her Ketone output rose too high, unfortunately, it was the opposite and in just 6 hours her Ketones tripled. They stopped the testing, drew the blood they needed and sent away for the results. This morning, after eating last night, her blood sugar dropped unexpectedly which they had to take into consideration with all the other results. They came in and talked with me and said that as they thought before, it is Ketotic Hypoglycemia. Instead of trying to write it out, I am going to copy and paste below the information about it. We also recieved a "No Wait" order for the ER. Any time we need to go to the ER for this, she has an order to be taken back immediately for an IV and a glucose test. I like that she won't have to wait and risk her blood sugar bottoming out or having a seizure. So anyway, we are all home and tired as hell. Time to catch up on some much needed sleep in a real bed, lol. Thank you to everyone who called or wrote me something. It was really nice to have support while being in there. Below is the information: Ketotic hypoglycemia is a rare but serious form of low blood sugar (hypoglycemia) that occurs in young children after a period of fasting, such as due to illness. Most children can tolerate going without food for a brief period with no serious side effects. But in children with certain inherited metabolic disorders or hormone deficiencies, skipping a meal may result in low blood sugar. In ketotic hypoglycemia, the body doesn't have enough stored carbohydrates to correct the low blood sugar because its stores are easily depleted. As a result, the body converts fats into usable carbohydrates (gluconeogenesis) to meet energy needs. A byproduct of this process is ketones. When ketones build up in the blood, they can lead to serious problems, such as coma. Signs and symptoms of ketotic hypoglycemia include: * Irritability * Sweating * Fatigue and lethargy * Rapid breathing * Low blood pressure, resulting in dizziness * Loss of consciousness * Coma Such signs and symptoms require emergency medical attention. Treatment of ketotic hypoglycemia may include intravenous (IV) saltwater (saline) and sugar (dextrose) solutions.
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