Tuesday, November 13, 2007
Introduction from me
Thought Id try this blog entry shit. Anyways Im only on My Space For Adovate reason!!!!!!!!! HEPITITUS C/ LIVER CANCER, I have both and I would like everybody to lose the styeriotype image that goes with having Hep/C.......... I too would like to be cured, I have failed 3 treatments in the last 5yrs Iam a non-responder to chemo-injections, Boy they suck too!!!!!! I just want you all to know that if there's anything I can do for you just ask OK. Its all GOOD!!!!!!!!
Wednesday, August 20, 2008
My HCV ADVOCACY
Category: News and Politics
I havent written a blog since last year, Ok here it goes, This blog goes directly to all HCV advocates, I for one dont have to explain shit to any one who's judges me for riding with my brothers, I work fuckin hard to get out the HCV awareness for "ALL" Im not an arm chair quaterback for HCV!! I have had an actuall State Legislator's commend me for who Iam and what I fight for! Nobody is gonna just hand me a fuckin new liver ! I have to earn it ! Money and politics is how any of us is even consider'd for a transplant of any kind ! I too am sick with HCV, I am at stage 4 with other major complications in my fuckin body. But that does not stop my ass for supporting our fight for our lives! I cant keep up with all my HCV advocates here, But dont fuckin judge me ! Dont ever judge a person by the clothes they wear! "GOD" made the person! The fuckin tailor made the clothes! Dont judge a person by the language they use!! A parrot can also talk,But its tongue is only an instrument! So you see, To all my HCV advocates, I Love and Respect each and every one of you! I expect the same in return! Or just get off my fuckin page!
12:55 AM - 7 Comments - 11 Kudos - Add Comment
Hep C the Silent Epidemic
Category: Life
My Canadian Sister McKenzie has written this along time ago, I just had to post this on my blog!!! Love and Respects to all!
To Whom it may concern:
Most people don't understand hepatitis C and cannot imagine what living with a chronic illness means. With the hope that there are some who wish to understand, these are some of the things I'd like you to know about us.
Please understand that being sick doesn't mean we are not still human with all the same emotions that healthy people experience. Some of us must spend our time carefully so that we conserve what little energy we possess. If you visit we may not be much fun, but we still love and appreciate company. Some of us worry about our jobs, schooling and families. Most of the time we'd like to hear what is going on in your life as well as sharing our lives.
Please understand that one can be happy but not healthy. When you have the flu you feel fairly miserable, but we've been ill for years. We can't be miserable all the time, in fact most of us work hard at not being miserable. So when you speak with us and we sound happy, it means we are happy. That's all. It doesn't mean we are not sick, in pain and extremely fatigued, or that a miracle cure has been found and we are all healthy once again. Please don't say, "Oh you're sounding better!" We are not sounding better, we are sounding happy. Feel free to remark about our happiness. Just don't assume that it means we are better.
Please understand that being able to stand up and participate in an activity for 15 or 20 minutes, doesn't necessarily mean that we can participate for 30 minutes or an hour. It's quite likely that doing that 15 minutes has exhausted our resources and we may need time to recover. Remember the last time you played a swift game of tennis or softball. You couldn't repeat that feat over and over again. This applies to every thing we do.
Please understand that chronic illness is variable. It's quite possible that one day we are able to walk to the park, or shop in the mall, while the next day we may have no energy at all. Please don't say, "But you did it yesterday." If you want us to do something, just ask and we will tell you if we are able. If it is necessary to cancel an appointment with you at the last moment , please don't take it personally. There are days when we feel great and all of a sudden that changes and the fatigue is overwhelming.
Please don't ask us how we got this disease. There are many ways to acquire hepatitis C. Some of us made a foolish choice to experiment with IV drugs when we were young and invincible. Some of us were born with hemophilia and need to use blood products to stay alive. Some of us were given blood transfusions before 1992. Some of us are veterans who fought proudly for our country and some of us are kidney dialysis patients as well. Many of us have no risk factors at all and do not know where we got hepatitis C. If we wish to share our medical history with you, we will. Please don't be afraid to hug us, kiss us or hold us. You cannot "catch" hepatitis C from us unless there was a mixing of our blood with yours.
Please understand if we tell you that we have to sit down, lie down or take our meds, that we have to do it now. Chronic illness doesn't wait for a convenient time. It does not feel good to have to stop what we are doing to tend to our health. Remember that we didn't ask for this. We mourn for our lives before illness, when we were free to pursue all our dreams and hopes. We hope you understand.
from:hepcfoundation
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